Releases Saturday 5 February 2000
No 7231 Volume 320

Please remember to credit the BMJ as source when publicising an
article and to tell your readers that they can read its full text on the
journal's web site (http://www.bmj.com).

If your story is posted on a website please include a link back to
the source BMJ article (URL's are given under titles).



(1) ANTENATAL SCREENING FOR HAEMOGLOBIN
DISORDERS ISINADEQUATE AND INEQUITABLE

(2) HRT HAS NO EFFECT ON PROGNOSIS OF BREAST
CANCER

(3) WOMEN OVER SEVENTY FIVE WOULD RATHER BE
DEAD THAN BE IN A HOME WITH A HIP FRACTURE



(1) ANTENATAL SCREENING FOR HAEMOGLOBIN
DISORDERS ISINADEQUATE AND INEQUITABLE

(Informed choice in genetic screening for thalassaemia during
pregnancy: audit from a national confidential inquiry)
http://www.bmj.com/cgi/content/full/320/7231/337

Only half of the couples at risk of passing on the haemoglobin
disorder thalassaemia to their children have full access to
information about their condition and the choices available to
them, find the authors of the UK Confidential Inquiry into
Antenatal Screening for Thalassaemia published in this week's
BMJ.

Antenatal screening for haemoglobin disorders should be
standard practice in the United Kingdom, explain Professor
Bernadette Modell from University College London and
colleagues, in order to identify couples at risk and to give them
an informed choice in every pregnancy, including the option of
a prenatal diagnosis. This option has been utilised less than
expected, say the authors and it is often assumed that this is
due to the unacceptability of abortion on genetic grounds, and
therefore of prenatal diagnosis, particularly among British
Muslims [certain ethnic groups in the UK are at a high risk of
such haemoglobin disorders including those of Cypriot, Indian,
Pakistani and Bangladeshi origin].

In their study of 138 couples in the UK who had experienced a
pregnancy affected by thalassaemia between 1990-1994,
Modell et al found that over half of all liveborn infants affected
with this haemoglobin disorder, had been the result of a failure
in the antenatal screening service. They also found that the
service is not provided to many British Pakistanis and
Bangladeshis, and they suggest that this is because of ethnic
stereotyping, when in fact prenatal diagnosis was found to be
highly acceptable to all ethnic groups at risk, especially when
offered in the early stages of pregnancy.

The authors conclude that although antenatal screening and
counselling for haemoglobin disorders are standard practices in
the UK, they are delivered inadequately and inequitably. An
explicit national policy is needed, they insist, to make prenatal
diagnosis in early stages of pregnancy available to all couples.

Contact:

Professor Bernadette Modell, Professor of Community
Genetics, Royal Free and University College London Medical
School, Department of Primary Care and Population Sciences,
Whittington Hospital, London
Email: b.modell@ucl.ac.uk

(2) HRT HAS NO EFFECT ON PROGNOSIS OF BREAST
CANCER

(Effect of hormone replacement therapy on the pathological
stage of breast cancer: population based, cross-sectional study)
http://www.bmj.com/cgi/content/full/320/7231/348

Some studies have suggested that women using of hormone
replacement therapies, who get breast cancer, develop tumours
with "favourable" pathological features compared to women
who get breast cancer and who do not use such therapies. In
this week's BMJ a study conducted in Scotland finds that
there is no evidence to suggest that women using hormone
replacement therapies develop tumours with favourable
prognostic features, however, nor do they develop poorer
prognosis tumours, which the authors say is reassuring.

Dr Sheila Stallard and colleagues from North Glasgow
Hospitals University NHS Trust and the Cancer Surveillance
Unit at the University of Glasgow (is this correct?) studied
1113 women aged 50-64 years of age who underwent routine
breast screening between May 1988 and December 1993. The
screening was undertaken in the region covered by the West
of Scotland Breast Screening Unit and each of the 1113
women had either a screen detected cancer or had developed
cancer in between screens. Within this group the authors found
that 166 (14.9 per cent) were using hormone replacement
therapy at the time they developed breast cancer.

Stallard et al found no difference in the type, size or grade of
tumour in women who were using hormone replacement
compared with those who were not. They therefore conlcude
that the evidence presented in their study supports the view
that using hormone replacement therapy gives neither
favourable nor poorer prognosis to those women who develop
breast cancer, which they say is reassuring.

Contact:

Sheila Stallard, Specialist Registrar, Vale of Leven Hospital,
Alexandria, Dunbartonshire
Email: dr37d@udcs.gla.ac.uk

(3) WOMEN OVER SEVENTY FIVE WOULD RATHER BE
DEAD THAN BE IN A HOME WITH A HIP FRACTURE

(Quality of life related to fear of falling and hip fracture in
older women: a time trade off study)
http://www.bmj.com/cgi/content/full/320/7231/341

Eighty per cent of women over the age of 75 years of age say
that they would rather be dead than admitted to a nursing home
after a hip fracture, according to researchers from Australia in
this week's BMJ.

During interviews with 194 women aged over 75 years, Mr
Glenn Salkeld and colleagues from the University of Sydney
and Hornsby Ku-ring-gai Hospital in New South Wales, found
that hip fractures are perceived as a profound threat to quality
of life. Any loss of ability to live independently in the
commnuity has significant detrimental effect on their quality of
life say the authors and four fifths would prefer to be dead
than admitted to a nursing home with a hip fracture. Compared
with other (time trade-off) studies the results suggest that
women would perceive a hip fracture as worse than breast
cancer, a heart attack or mild osteoarthritis, say the authors.

Hip fractures are a major cause of morbidity and mortality and
almost all occur after a fall, explain Salkeld et al. Therefore
they conclude that any interventions that can reduce the
likelihood of falls and injury in older women will not only save
lives but will prevent a significant reduction in their quality of
life.

Contact:

Mr Glenn Salkeld, Senior Lecturer, Social and Public Health
Economics Research Group, Department of Public Health and
Community Medicine, University of Sydney, New South
Wales, Australia
Email: glenns@pub.health.usyd.edu.au


FOR ACCREDITED JOURNALISTS

Embargoed press releases and articles are available from:

Public Affairs Division
BMA House
Tavistock Square
London WC1H 9JR
(contact Jill Shepherd;pressoffice@bma.org.uk)

and from:

the EurekAlert website, run by the American Association for the
Advancement of Science
(http://www.eurekalert.org)