Releases Saturday 26 July 2003
No 7408 Volume 327

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(1) FAMILIES COPE BETTER AFTER EUTHANASIA
THAN NATURAL DEATH

(2) DOCTORS OVER-ESTIMATE SURVIVAL OF
TERMINALLY ILL PATIENTS

(3) IS LEGALISING EUTHANASIA PREMATURE?

(4) DOCTORS ARE OFTEN STRONGLY AFFECTED
BY PATIENT DEATHS

(5) HOW DO PEOPLE IN AFRICA WANT TO DIE?

(6) EXPERTS WELCOME MAJOR REFORMS TO THE
CORONER'S SERVICE



(1) FAMILIES COPE BETTER AFTER EUTHANASIA
THAN NATURAL DEATH

(Effects of euthanasia on the bereaved family and friends:
a cross sectional study)
http://bmj.com/cgi/content/full/327/7408/189

The bereaved family and friends of cancer patients who
die by euthanasia have less grief symptoms and
post-traumatic stress reactions than the bereaved of
comparable cancer patients who die a natural death,
finds a study in this week's BMJ.

Researchers from the Netherlands assessed 189
bereaved family members and close friends of terminally
ill cancer patients who died by euthanasia and 316
bereaved family members and close friends of
comparable cancer patients who died a natural death
between 1992 and 1999.

The family and friends of cancer patients who died by
euthanasia had less traumatic grief symptoms, less
current feeling of grief, and less post-traumatic stress
reactions than the family and friends of cancer patients
who died of natural causes. These differences were
independent of other risk factors.

Possible explanations for less grief symptoms among the
family and friends of patients who died by euthanasia
include the opportunity to say goodbye, being more
prepared for the way and day of the imminent death, and
being able to talk openly about death, say the authors.

"Our results should not be interpreted as a plea for
euthanasia, but as a plea for the same level of care and
openness in all patients who are terminally ill," they
conclude.

Contacts:

Nikkie Swarte, Research Fellow or Peter Heintz,
Professor of Gynaecological Oncology, Department of
Gynaecology, University Medical Center Utrecht, The
Netherlands
Email: n.swarte@azu.nl

(2) DOCTORS OVER-ESTIMATE SURVIVAL OF
TERMINALLY ILL PATIENTS

(A systematic review of physicians' survival predictions
in terminally ill cancer patients)
http://bmj.com/cgi/content/full/327/7408/195

Doctors tend to over-estimate the survival of terminally ill
cancer patients, but become more accurate closer to the
date of death, finds a study in this week's BMJ.
Accurate prognoses are important so patients can plan
for death.

Researchers reviewed eight studies involving more than
1,500 patients over 30 years to assess the accuracy of
doctors' survival predictions.

They found that doctors' survival predictions are
frequently inaccurate and usually over-optimistic, being
out by more than a month a quarter of the time.
However, their predictions become more accurate closer
to death.

Despite their tendency to be over-optimistic, predictions
of up to six months are nevertheless reliable, being
closely correlated with actual survival. This suggests that
doctors are able to sense when things are starting to go
wrong, say the authors.

Doctors need to be aware of their tendency to
over-estimate survival as it may affect the patients'
prospects for achieving a good death, they conclude.

Contact:

Paul Glare, Head of Department, Department of
Palliative Care, Royal Prince Alfred Hospital, New
South Wales, Australia
Email: paul@email.cs.nsw.gov.au

(3) IS LEGALISING EUTHANASIA PREMATURE?

(Patients' voices are needed in debates on euthanasia)
http://bmj.com/cgi/content/full/327/7408/213

Legalising euthanasia is premature when we still do not
know why patients want it and whether better end of life
care would change their views, argue researchers in this
week's BMJ.

Euthanasia debates have focused on suffering, respect
for patient autonomy, and dignified death, but little
evidence is available from patients who desire
euthanasia.

A few studies have shown that patients' reasons for
wanting euthanasia are not confined to the physical
effects of disease, but relate to their whole life
experiences. However, more studies are urgently needed
to capture their voices, say the authors.

Rather than focusing on assessing the mental competence
of patients requesting euthanasia or determining clear
legal guidelines, doctors must acquire the skills for
providing good end of life care, they add. These include
the ability to "connect" with patients, diagnose suffering,
and understand patients' hidden agendas through
in-depth exploration.

There is much to ponder over the meaning of a
euthanasia request before we have to consider its
justification. The desire for euthanasia must not be taken
at face value, they conclude.

Contacts:

Jimmy Tsui, Hong Kong Hospital Authority Media
Relations

Ilora Finlay, Professor of Palliative Medicine, University
of Wales College of Medicine, Cardiff, UK
Email: iloraf@globalnet.co.uk

(4) DOCTORS ARE OFTEN STRONGLY AFFECTED
BY PATIENT DEATHS

(Doctors' emotional reactions to recent death of a patient:
cross-sectional study of hospital doctors)
http://bmj.com/cgi/content/full/327/7408/185
BMJ Volume
327, pp 185-9

Doctors are often powerfully affected by the deaths of
patients for whom they care, and some may need
emotional support, according to a study in this week's
BMJ.

Researchers at two teaching hospitals in the United
States investigated the emotional reactions of 188
doctors who cared for 68 patients at the time of their
death.

Most doctors (74%) thought that taking care of the
patient was a satisfying experience. Many reported
moderate emotional impact from a patient's death,
though 31% rated the death as having strong emotional
impact.

Women and those doctors who had cared for the patient
for a longer time experienced stronger emotional
reactions. Level of training was not related to emotional
reactions, but interns (equivalent to UK junior house
officers) reported needing more emotional support than
attending physicians (equivalent to UK consultants).

Doctors reported "feeling upset when thinking about the
patient" and feeling "numb" after the death. They also
reported "getting emotional support from others" and
"trying to see the death in a different light to make it seem
more positive" as coping strategies.

Although most junior doctors discussed the patient's
death with an attending physician, less than a quarter
found senior teaching staff to be the most helpful source
of support.

This research provides new insights into the effect of
patients' deaths on doctors and raises some questions
about current medical training in the United States, say
the authors. Medical teams may benefit from debriefing
within the department to give junior doctors an
opportunity to share emotional responses and reflect on
the patient's death.

Contact:

Ellen Redinbaugh, Research Instructor, Department of
Behavioural Medicine and Oncology, University of
Pittsburgh Cancer Institute, Pittsburgh, USA
Email: ellenr@pitt.edu

(5) HOW DO PEOPLE IN AFRICA WANT TO DIE?

(A good death in Uganda: survey of needs for palliative
care for terminally ill people in urban areas)
http://bmj.com/cgi/content/full/327/7408/192

(Quality care at the end of life in Africa)
http://bmj.com/cgi/content/full/327/7408/209

Terminally ill people in Africa want to die at home
without pain, stigma, or financial hardship. Yet two
articles in this week's BMJ show how poverty, limited
healthcare services, and poor access to pain relief are
major barriers to improving end of life care.

In the first study, terminally ill patients in Uganda believe
a "good death" occurs at home, in the absence of pain
and other distressing symptoms, without stigma, and with
adequate finances for the basic needs.

However, in reality, most terminally ill people experience
financial hardship, says Ekiria Kikule of Hospice Africa.

In the second study, members of a WHO project to
improve palliative care in Africa find that the greatest
needs of terminally ill patients were for adequate pain
relief, accessible and affordable drugs, and financial
support.

Terminal illness often causes family financial crisis
because of loss of income from both patient and family
caregiver, write the authors.

Special emphasis should be given to home based
palliative care provided by trained family and community
caregivers to counteract the severe shortage of
professional healthcare workers, they conclude.

Contacts:

Ekiria Kikule, Hospice Africa (Uganda), Kampala,
Uganda
Email: ekikule@hospiceafrica.or.ug

Cecilia Sepulveda, Programme on Cancer Control,
World Health Organisation, Geneva Switzerland
Email: sepulvedac@who.int

(6) EXPERTS WELCOME MAJOR REFORMS TO THE
CORONER'S SERVICE

(Editorial: Reforming the coroner's service)
http://bmj.com/cgi/content/full/327/7408/175

Proper death investigation protects the public and cannot
be neglected any longer, write two senior forensic
doctors in this week's BMJ.

Christopher Milroy and Helen Whitwell, Professors of
Forensic Pathology at the University of Sheffield argue
that the current system is fragmented, legalistic, and
inadequately funded. They welcome the recent review of
the coroner's service, and the Shipman inquiry report,
which they say "will result in major changes."

The review proposes that all coroners should be legally
qualified and overall responsibility for the coroner's
system will be vested in a national "coronial council." The
Shipman inquiry advocates properly trained coroner's
investigators, headed by a chief investigator, to replace
the current system of coroner's officers.

Both the review and the inquiry propose greater medical
input into the coroner's system and both recommend
replacing the current system of death certification and
cremation certificates with one unified process.

The inquiry also supports the close association of
forensic medicine and the coroner's service, a situation
that has existed in Sheffield for three decades but which
has not been replicated elsewhere in the United
Kingdom, say the authors.

These proposals would mean greater integration of the
services required in death investigation, with medical
issues left to those with appropriate medical training, add
the authors. The new system will require funding, but the
status quo is not acceptable, they conclude.

Contact:

Christopher Milroy, Professor of Forensic Pathology,
University of Sheffield, UK
Email: c.m.milroy@sheffield.ac.uk


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