This week in the BMJ
Volume 327,
Number 7408,
Issue of 26 Jul 2003
Doctors overestimate survival
Caring for dying patients is a source of satisfaction and of distress
Bereaved people cope better after euthanasia than natural death
Patients in Uganda prefer to die at home
Facilitating consent for trials in dying patients
Doctors overestimate survival
Doctors know when cancer patients are approaching death, even if their
predictions of time till death are inaccurate. Glare and colleagues
(p 195) conducted a
systematic review and meta-analysis of eight studies that assessed the
accuracy of doctors' survival predictions. They found that doctors often
overestimate the survival of terminally ill cancer patients and are wrong by
more than a month a quarter of the time. Predictions were more accurate closer
to death. However, doctors' predictions were reliable, being closely
correlated with survival over the next six months. The authors say that
doctors need to be aware of their tendency to overestimate
survival.
Caring for dying patients is a source of satisfaction and of distress
The longer a doctor cares for a patient, the more affected he or she is
when that patient dies. Redinbaugh and colleagues
(p 185) surveyed 188
doctors' emotional reactions to recent deaths of patients in two American
teaching hospitals. The patients who died were usually new to the doctors, and
most doctors did not feel close to them. Still, most reported moderate levels
of emotional distress, and these increased the longer they cared for the
patient. Interns (house officers) and female doctors reported the greatest
needs for emotional support. Caring for dying patients is part of all doctors'
clinical work, but it rarely gets explored. The authors say that further
research is needed on how senior doctors might help to support junior doctors
after the death of a
patient.
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Credit: PHOTONICA
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Bereaved people cope better after euthanasia than natural death
Friends and family of cancer patients who died by euthanasia cope better
than those of cancer patients who died a natural death. Swarte and colleagues
(p 189) conducted a
cross sectional study in the Netherlands with the bereaved of patients who had
died by euthanasia, comparing them to the bereaved of matched control patients
who had died of natural causes in the same hospital during the same time
period. The bereaved of patients who died by euthanasia had fewer grief
symptoms and post-traumatic stress reactions on standard scales. The
opportunity to say goodbye to the patient was an important factor in better
coping. The authors say that their results are a plea not for euthanasia but
for support for the same level of care and openness for all cancer patients
who are terminally ill.
Patients in Uganda prefer to die at home
A good death in developing countries like Uganda, where resources are
scarce, occurs when the dying person is being cared for at home, is free from
pain and other distressing symptoms, feels no stigma, and is at peace. It is
also important that basic needs such as food and school fees for children are
met without the patient feeling dependent on others. These are the conclusions
of Kikule (p 192),
based on her study in Kampala with 173 patients with HIV/AIDS or cancer. The
home was the preferred site for care as it was considered a safe place and
housed the relationship between the patient and family. The author says that
few participants used government health facilities as they were generally
poorly equipped and health staff gave priority to patients with curable
conditions and did not have time for terminally ill
patients.
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Credit: SEAN SPRAGUE/PANOS
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Facilitating consent for trials in dying patients
Research in palliative care settings needs novel approaches. As obtaining
fully informed consent is usually impossible, research on drugs that could
benefit dying patients is particularly difficult. Rees and Hardy
(p 198) have
developed a novel advance consent process to support a trial comparing two of
the drugs commonly used for the control of "death rattle." If
generally accepted, this may facilitate the research necessary to advance the
care of dying patients.
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Credit: JUNEBUG CLARK/SPL
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